Psychometric evaluation and cultural adaptation of the Spanish version of the "Scale for End-of Life Caregiving Appraisal".
OBJECTIVE
To translate, culturally adapt, and psychometrically evaluate the Spanish version of the "Scale for End-of Life Caregiving Appraisal" (SEOLCAS).


METHOD
Observational cross-sectional study. Convenience sample of 201 informal end-of-life caregivers recruited in a southern Spanish hospital. The reliability of the questionnaire was assessed through its internal consistency (Cronbach's α) and temporal stability (Pearson's correlation coefficient [r] between test-retest). The content validity index of the items and the scale was calculated. Criterion validity was explored through performing a linear regression analysis to evaluate the SEOLCAS' predictive validity. Exploratory factor analysis was used to examine its construct validity.


RESULTS
The SEOLCAS' reliability was very high (Cronbach's α = 0.92). Its content validity was excellent (all items' content validity index = 0.8-1; scale's validity index = 0.88). Evidence of the SEOLCAS' criterion validity showed that the participants' scores on the SEOLCAS explained approximately 79.3% of the between-subject variation of their results on the Zarit Burden Interview. Exploratory factor analysis provided evidence of the SEOLCAS' construct validity. This analysis revealed that two factors ("internal contingencies" and "external contingencies") explained 53.77% of the total variance found and reflected the stoic Hispanic attitude toward adversity.Significance of resultsThe Spanish version of the SEOLCAS has shown to be an easily applicable, valid, reliable, and culturally appropriate tool to measure the impact of end-of-life care provision on Hispanic informal caregivers. This tool offers healthcare professionals the opportunity to easily explore Hispanic informal end-of-life caregivers' experiences and discover the type of support they may need (instrumental or emotional) even when there are communicational and organizational constraints.
['Hernández-Padilla|José Manuel|JM|0000-0002-5032-9440', 'Correa-Casado|Matías|M|', 'Granero-Molina|José|J|', 'Cortés-Rodríguez|Alda Elena|AE|', 'Matarín-Jiménez|Tamara María|TM|', 'Fernández-Sola|Cayetano|C|0000-0003-1721-0947']
D000328:Adult D000368:Aged D003430:Cross-Sectional Studies D065246:Culturally Competent Care D005260:Female D006801:Humans D008297:Male D008875:Middle Aged D011594:Psychometrics D015203:Reproducibility of Results D013030:Spain D011795:Surveys and Questionnaires D013727:Terminal Care D014175:Translating
Psychometrics End-of-life care Carers Family caregivers Palliative care Questionnaire design