Adherence to clinical care guidelines for cystic fibrosis-related diabetes in 659 German/Austrian patients.
BACKGROUND
In Germany/Austria, data on medical care for cystic fibrosis-related diabetes (CFRD) is limited.


METHODS
Anonymized data from 659 CFRD patients were analyzed and compared to the latest ADA/CFF guidelines.


RESULTS
Specialized diabetes clinics were attended less frequently than recommended (3.1 vs. 4.0 times yearly). 7.9% of patients had a complete profile of examinations: diabetes education (44.9%), HbA1c (88.8%), blood pressure (79.5%), BMI (86.5%), lipid status (37.5%), retinopathy (29.9%), microalbuminuria (33.2%), and self-monitoring of blood glucose (71.6%). HbA1c and blood pressure were measured less frequently than recommended (2.3 and 2.0 vs. 4.0 times yearly). Overall, guidelines were followed more frequently in children than adults. Contrary to recommendations, not all patients were treated with insulin (77.2 vs. 100.0%). Insulin therapy was initiated earlier in children than adults, but there was still a substantial delay (0.9 vs. 2.7years after diagnosis, p<0.001).


CONCLUSION
In CFRD patients studied, adherence to care guidelines was suboptimal.
['Scheuing|Nicole|N|', 'Berger|Gabriele|G|', 'Bergis|Dominik|D|', 'Gohlke|Bettina|B|', 'Konrad|Katja|K|', 'Laubner|Katharina|K|', 'Lilienthal|Eggert|E|', 'Moser|Christine|C|', 'Schütz-Fuhrmann|Ingrid|I|', 'Thon|Angelika|A|', 'Holl|Reinhard W|RW|', '|||']
D000293:Adolescent D000328:Adult D001317:Austria D002648:Child D003550:Cystic Fibrosis D048909:Diabetes Complications D005260:Female D005858:Germany D006442:Glycated Hemoglobin A D019983:Guideline Adherence D006801:Humans D007004:Hypoglycemic Agents D008297:Male D015596:Nutrition Assessment D017410:Practice Guidelines as Topic D012042:Registries D012189:Retrospective Studies D055815:Young Adult
Cystic fibrosis-related diabetes Medical care Anti-hyperglycemic therapy Guideline recommendations Insulin treatment Nutritional status