Embodied accounts of HIV and hope: using audio diaries with interviews.
Capturing the complexity of the experience of chronic illness over time presents significant methodological and ethical challenges. In this article, we present methodological and substantive insights from a longitudinal qualitative study with 20 people living with HIV in Serbia. We used both repeated in-depth interviews and audio diaries to explore the role of hope in coping with and managing HIV. Using thematic longitudinal analysis, we found that the audio diaries produced distinctive, embodied accounts that straddled the public/private divide and engaged with alternative social scripts of illness experience. We suggest that this enabled less socially anticipated accounts of coping, hoping, and distress to be spoken and shared. We argue that examining the influence of different methods on accounting not only illustrates the value of qualitative mixed-method study designs but also provides crucial insights to better understand the lived experience of chronic illness.
['Bernays|Sarah|S|', 'Rhodes|Tim|T|', 'Jankovic Terzic|Katarina|K|']
D000223:Adaptation, Psychological D000328:Adult D003906:Developing Countries D005260:Female D015658:HIV Infections D065026:Hope D006801:Humans D007406:Interview, Psychological D008137:Longitudinal Studies D008297:Male D063545:Personal Narratives as Topic D036301:Qualitative Research D012650:Self Disclosure D055771:Serbia D012803:Sick Role D055815:Young Adult
interviews Europe, Eastern HIV / AIDS diaries / journals longitudinal studies