Communicating about death and dying: Developing training for staff working in services for people with intellectual disabilities.
BACKGROUND
Many people with intellectual disabilities are affected by death, yet conversations about death are often avoided by staff working with them. This study aimed to assess staff training needs and to develop, trial and evaluate a training course on communicating about death and dying.


METHOD
(i) Semi-structured interviews with 20 staff in residential/supported living services to establish training needs; (ii) three-one-day courses were attended by 114 staff and evaluated through questionnaires. The course consisted of World Café sessions, presentations and feedback by people with intellectual disabilities, and an expert teaching session.


RESULTS
Staff fear, cultural influences and inexperience with death-related conversations were major communication barriers. Evaluation of the course was overwhelmingly positive.


CONCLUSIONS
Intellectual disabilities services must have clear staff training strategies around death, dying and communication. More work is needed to assess the resource implications and impact on practice of different training methods and other support strategies.
['Tuffrey-Wijne|Irene|I|http://orcid.org/0000-0002-7288-9529', 'Rose|Tracey|T|', 'Grant|Robert|R|', 'Wijne|Astrid|A|']
D001291:Attitude of Health Personnel D001293:Attitude to Death D003142:Communication D003643:Death D006282:Health Personnel D006801:Humans D008607:Intellectual Disability D008297:Male D011369:Professional-Patient Relations D011795:Surveys and Questionnaires
communication death and dying intellectual disabilities staff training bereavement terminal illness