Dementia Care Across a Tertiary Care Health System: What Exists Now and What Needs to Change.
OBJECTIVES
This study explored the process of care for persons living with dementia (PLWDs) in various care settings across a tertiary care system and considers challenges and opportunities for change.


DESIGN
Aimed at quality improvement, qualitative interviews were conducted with key stakeholders in dementia care across geriatric outpatient clinics, medical and psychiatric emergency departments, and the main hospital in 2016.


SETTING AND PARTICIPANTS
Forty-nine interactive interviews were conducted with a purposive and snowball sampling of health care professionals (physicians, nurses, social workers, administrators) and families in a large, academic health care system.


MEASURES
Qualitative interview guides were developed by the study team to assess the process of care for PLWDs and strengths and challenges to delivering that care.


RESULTS
Key themes emerging from the interviews in each care setting are presented. The outpatient setting offers expertise, a multidisciplinary clinic, and research opportunities, but needs to respond to long waitlists, space limitations, and lack of consensus about who owns dementia care. The emergency department offers a low nurse/patient ratio and expertise in acute medical problems, but experiences competing demands and staff turnover; additionally, dementia does not appear on medical records, which can impede care. The hospital offers consultative services and resources, yet the physical space is confined and chaotic; sitters and antipsychotics can be overused, and placement outside of the hospital for PLWDs can be a challenge.


CONCLUSIONS AND IMPLICATIONS
Five key recommendations are provided to help health systems proactively prepare for the coming boom of PLWD and their caregivers, including outpatient education, a dementia care management program to link services, Internet-based training for providers, and repurposing sitters as Elder Life specialists.
['Leggett|Amanda|A|', 'Connell|Cathleen|C|', 'Dubin|Leslie|L|', 'Dunkle|Ruth|R|', 'Langa|Kenneth M|KM|', 'Maust|Donovan T|DT|', 'Roberts|J Scott|JS|', 'Spencer|Beth|B|', 'Kales|Helen C|HC|']
D003695:Delivery of Health Care D003704:Dementia D004632:Emergency Medical Services D006801:Humans D007297:Inpatients D007407:Interviews as Topic D010045:Outpatients D036301:Qualitative Research D058996:Quality Improvement D063128:Tertiary Healthcare
Dementia care health system outpatient emergency department inpatient