Family Quality of Life During the Transition to Adulthood for Individuals With Intellectual Disability and/or Autism Spectrum Disorders.
Recognizing the prominent role of parents in supporting their children with intellectual and developmental disabilities (IDD), improving quality of life for these families is an essential endeavor. While much attention has focused on the experiences of families with younger children with IDD, little is known about the family quality of life (FQOL) among families with transition-age youth and young adults. We examined the FQOL ratings of 425 parents with a child between 13-21 years of age with intellectual disability or autism to understand FQOL and the factors that may shape it. Overall satisfaction with FQOL was somewhat high for this sample, with some variability across domains. Higher FQOL ratings were predicted by lower frequency of challenging behaviors, lower support needs, and higher strength of parental religious faith. We present recommendations for research and practice focused on promoting quality of life during the transition period.
['Boehm|Thomas L|TL|', 'Carter|Erik W|EW|', 'Taylor|Julie Lounds|JL|']
D000293:Adolescent D041923:Adolescent Development D000328:Adult D002659:Child Development Disorders, Pervasive D005190:Family D005260:Female D006801:Humans D008607:Intellectual Disability D008297:Male D011788:Quality of Life D055815:Young Adult
family quality of life transition autism faith severe disabilities spirituality