Survivorship care and support following treatment for breast cancer: a multi-ethnic comparative qualitative study of women's experiences.
BACKGROUND
As the number of breast cancer survivors continues to rise, Western populations become more ethnically and socially diverse and healthcare resources become ever-more stretched, follow-up that focuses on monitoring for recurrence is no longer viable. New models of survivorship care need to ensure they support self-management and are culturally appropriate across diverse populations. This study explored experiences and expectations of a multi-ethnic sample of women with breast cancer regarding post-treatment care, in order to understand potential barriers to receiving care and inform new models of survivorship care.


METHODS
A phenomenological qualitative research design was employed. In-depth interviews were conducted with women from diverse socio-demographic backgrounds in England, who completed treatment for breast cancer in the 12 months prior to the study. Data were analysed using Framework Analysis.


RESULTS
Sixty-six women participated and reported expectations and needs were unmet at follow-up. Whilst there were more commonalities in experiences, discernible differences, particularly by ethnicity and age, were identified relating to three key themes: emotional responses on transition to follow-up; challenges communicating with healthcare professionals at follow-up; and challenges finding and accessing information and support services to address unmet needs.


CONCLUSIONS
There are cultural differences in the way healthcare professionals and women communicate, not necessarily differences in their post-treatment needs. We do not know if new models of care meet survivors' needs, or if they are appropriate for everyone. Further testing and potential cultural and linguistic adaptation of models of care is necessary to ensure their appropriateness and acceptability to survivors from different backgrounds. New ways of providing survivorship care mean survivors will need to be better prepared for the post-treatment period and the role they will have to play in managing their symptoms and care.
['Tompkins|Charlotte|C|', 'Scanlon|Karen|K|', 'Scott|Emma|E|', 'Ream|Emma|E|', 'Harding|Seeromanie|S|', 'Armes|Jo|J|']
D000328:Adult D000359:Aftercare D000368:Aged D001943:Breast Neoplasms D004739:England D005006:Ethnicity D005260:Female D006801:Humans D008875:Middle Aged D009364:Neoplasm Recurrence, Local D017060:Patient Satisfaction D036301:Qualitative Research D012648:Self Care D012944:Social Support D015996:Survival Rate D017741:Survivors D014852:Wales
Survivorship care Breast cancer Multi-ethnic Qualitative Follow-up Aftercare