New insights into stages of lyme disease symptoms from a novel hospital-based registry.
BACKGROUND
Western Connecticut Health Network created the Lyme Disease Registry in response to the community's request and clinical need for more Lyme disease research. The registry includes acute, recovered, and persistently symptomatic patients to better define the different stages of the disease. The design of the registry was guided by community and clinician input through a community-based participatory research process.


METHODS
Registry participants are asked questions regarding their diagnosis, symptoms, treatments, recovery, and satisfaction with the Registry. A blood specimen is also collected and stored at the initial appointment.


RESULTS
The Lyme Disease Registry has enrolled 256 participants, 24% are acute cases, 45% are persistently symptomatic cases, and 31% are recovered cases. The symptoms experienced by the group of patients with persistent symptoms had unexpectedly strong overlap with those experienced by acutely infected patients.


CONCLUSION
The difference between symptoms in the acutely infected patients and those experiencing persistent symptoms is not as large as initially thought.
['Lobraico|Jessika|J|', 'Butler|Amber|A|', 'Petrini|Joann|J|', 'Ahmadi|Ramin|R|']
D000208:Acute Disease D000293:Adolescent D000328:Adult D000368:Aged D000369:Aged, 80 and over D002648:Child D055812:Community-Based Participatory Research D003237:Connecticut D005260:Female D006753:Hospital Records D006801:Humans D008193:Lyme Disease D008297:Male D008875:Middle Aged D017060:Patient Satisfaction D012042:Registries D055815:Young Adult
community health disease management health outcomes prevention primary care