Meaning and components of quality of life among individuals with spinal cord injury in Yogyakarta Province, Indonesia.
PURPOSE
Knowledge on the meaning of quality of life in individuals with spinal cord injury in developing countries is limited. This study aims to explore the meaning and components of quality of life for individuals with spinal cord injury in a rural area in Indonesia.


METHOD
Data were obtained through semi-structured interviews with 12 individuals with paraplegia (8 males, 4 females) aged 24-67 years. Thematic analysis was used to identify themes that constitute meaning and components of quality of life.


RESULTS
Quality of life was not an easily understood concept, while "life satisfaction" and "happiness" were. Life satisfaction was associated with a person's feeling when achieving goals or dreams and related to fulfillment of needs. Thirteen components of life satisfaction were identified and categorized into five domains as follows: (1) participation: earning income and work, being useful to others, community participation, and having skills and knowledge, (2) social support: social support, social relationship, (3) relationship with God: injury is God's will, praying, (4) independence: being independent, mobility and accessibility, and health, and (5) psychological resources: accepting the condition, maintaining goals and motivation.


CONCLUSIONS
Social, cultural and religious influences were prominent in the perception of life satisfaction. The measurement of quality of life for individuals with spinal cord injury in Indonesia needs to consider locally perceived meaning and components of quality of life. Implications for Rehabilitation Financial, social and health needs of individuals with spinal cord injury in Indonesia must be immediately addressed. To increase financial independence, rehabilitation professionals should equip individuals with spinal cord injury with adequate self-employment skills. Sociocultural and religious aspects should be considered in the measurement of quality of life.
['Ferdiana|Astri|A|0000-0003-0666-4302', 'Post|Marcel W M|MWM|0000-0002-2205-9404', 'King|Nigel|N|0000-0003-0585-7364', 'Bültmann|Ute|U|', 'van der Klink|Jac J L|JJL|']
D000328:Adult D001294:Attitude to Health D003256:Community Participation D006233:Disabled Persons D004651:Employment D005260:Female D006801:Humans D057187:Independent Living D007214:Indonesia D007398:Interpersonal Relations D008297:Male D008875:Middle Aged D010549:Personal Satisfaction D011788:Quality of Life D012424:Rural Population D012944:Social Support D013119:Spinal Cord Injuries
Quality of life spinal cord injury developing countries disabled persons