Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness.
AIMS AND OBJECTIVES
To describe and explore the experience of healthcare encounters in families living with chronic illness.


BACKGROUND
Living with chronic illness is a family concern and often includes frequent encounters with healthcare professionals. These encounters affect how persons with illness and family members handle everyday life. Disease-related explanations are perceived by healthcare professionals as being of higher importance than the actual experience of illness, even though patients are concerned with issues involving their everyday life.


DESIGN
A descriptive design with a qualitative approach.


METHODS
Narrative family interviews were conducted with twelve families, using a qualitative content analysis.


RESULTS
One main category was indicated following analysis, specifically "The impact of an accompanying family member." Additionally, three subcategories were revealed; "The importance of collaboration," "Mutual understanding," "A desire to be confirmed in one's illness".


CONCLUSIONS AND RELEVANCE TO CLINICAL PRACTICE
Having a participating family member increased the sense of power in families during encounters with healthcare professionals. This participation constitutes a level of support, making it easier for families to handle everyday life due to illness. Family members are, in most cases, included in discussions and decisions, both before and after encounters, and it should be a natural for healthcare professionals to invite them to the encounter too. This is an offer that may not fit every family, but the person with illness or the family should at least have the opportunity to choose.
['Årestedt|Liselott|L|http://orcid.org/0000-0003-0975-3343', 'Persson|Carina|C|', 'Rämgård|Margareta|M|', 'Benzein|Eva|E|']
D000203:Activities of Daily Living D000328:Adult D000368:Aged D002908:Chronic Disease D003266:Continuity of Patient Care D005190:Family D005260:Female D006282:Health Personnel D006801:Humans D007407:Interviews as Topic D008297:Male D008875:Middle Aged D011368:Professional-Family Relations D036301:Qualitative Research
experiences healthcare professionals family healthcare encounters content analysis Swedish family systems nursing