Translating Biobank Science into Patient-Centered Language.
INTRODUCTION
This project used Boot Camp Translation (BCT) to translate the complex medical jargon of biobanking into locally relevant evidence-based messages and materials to support increased knowledge and understanding in the local community.


METHODS
Biobank BCT was a partnership of 16 community members and 5 academic researchers. The partnership met for 8 months.


RESULTS
The partnership developed five main and seven submessages to assist patients and community members in making an informed decision about enrollment in a biobank.


DISCUSSION
The resulting messages balance an individual's right to privacy and choice, while encouraging participation for the greater good.
['Coors|Marilyn E|ME|', 'Westfall|Noah|N|', 'Zittleman|Linda|L|', 'Taylor|Matthew|M|', 'Westfall|John M|JM|']
D018070:Biological Specimen Banks D035843:Biomedical Research D032882:Comprehension D003219:Confidentiality D019317:Evidence-Based Medicine D006801:Humans D033181:Information Dissemination D007802:Language
biobank biomedical ethics community engagement