Psychometric Properties of a Spanish-Language Version of a Short-Form FAMCARE: Applications to Caregivers of Patients With Alzheimer's Disease and Related Dementias.
Although family satisfaction is recognized as a critical indicator of quality care for persons with serious illness, Spanish-language measures are limited. The study aims were to develop a Spanish translation of the short-form Family Satisfaction With End-of-Life Care (FAMCARE), investigate its psychometric properties in Hispanic caregivers to patients with Alzheimer's disease and related dementias (ADRD; N = 317; 209 interviewed in Spanish), and add parameters to an existing item bank. Based on factor analyses, the measure was found to be essentially unidimensional. Reliabilities from a graded item response theory model were high; the average estimate was 0.93 for the total and Spanish-language subsample. Discrimination parameters were high, and the model fit adequate. This is the first study to examine the performance of the short-form FAMCARE measure among Hispanics and caregivers to patients with ADRD. The short-form measure can be recommended for Hispanics and caregivers to patients with ADRD.
['Teresi|Jeanne A|JA|', 'Ocepek-Welikson|Katja|K|', 'Ramirez|Mildred|M|', 'Ornstein|Katherine A|KA|', 'Bakken|Suzanne|S|', 'Siu|Albert|A|', 'Luchsinger|José A|JA|']
D000328:Adult D000368:Aged D000369:Aged, 80 and over D000544:Alzheimer Disease D017028:Caregivers D003704:Dementia D005163:Factor Analysis, Statistical D005260:Female D006302:Health Services Research D006630:Hispanic or Latino D006801:Humans D008297:Male D008875:Middle Aged D009519:New York City D010549:Personal Satisfaction D011594:Psychometrics D013727:Terminal Care D014177:Translations
FAMCARE caregivers item bank item response theory Alzheimer’s disease Spanish language confirmatory factor analyses palliative care