The Sight Loss and Vision Priority Setting Partnership (SLV-PSP): overview and results of the research prioritisation survey process.
OBJECTIVES
The Sight Loss and Vision Priority Setting Partnership aimed to identify research priorities relating to sight loss and vision through consultation with patients, carers and clinicians. These priorities can be used to inform funding bodies' decisions and enhance the case for additional research funding.


DESIGN
Prospective survey with support from the James Lind Alliance.


SETTING
UK-wide National Health Service (NHS) and non-NHS.


PARTICIPANTS
Patients, carers and eye health professionals. Academic researchers were excluded solely from the prioritisation process. The survey was disseminated by patient groups, professional bodies, at conferences and through the media, and was available for completion online, by phone, by post and by alternative formats (Braille and audio).


OUTCOME MEASURE
People were asked to submit the questions about prevention, diagnosis and treatment of sight loss and eye conditions that they most wanted to see answered by research. Returned survey questions were reviewed by a data assessment group. Priorities were established across eye disease categories at final workshops.


RESULTS
2220 people responded generating 4461 submissions. Sixty-five per cent of respondents had sight loss and/or an eye condition. Following initial data analysis, 686 submissions remained which were circulated for interim prioritisation (excluding cataract and ocular cancer questions) to 446 patients/carers and 218 professionals. The remaining 346 questions were discussed at final prioritisation workshops to reach agreement of top questions per category.


CONCLUSIONS
The exercise engaged a diverse community of stakeholders generating a wide range of conditions and research questions. Top priority questions were established across 12 eye disease categories.
['Rowe|Fiona|F|', 'Wormald|Richard|R|', 'Cable|Richard|R|', 'Acton|Michele|M|', 'Bonstein|Karen|K|', 'Bowen|Michael|M|', 'Bronze|Carol|C|', 'Bunce|Catey|C|', 'Conroy|Dolores|D|', 'Cowan|Katherine|K|', 'Evans|Kathy|K|', 'Fenton|Mark|M|', 'Giles|Heather|H|', 'Gordon|Iris|I|', 'Halfhide|Louise|L|', 'Harper|Robert|R|', 'Lightstone|Anita|A|', 'Votruba|Marcela|M|', 'Waterman|Heather|H|', 'Zekite|Antra|A|']
D001766:Blindness D005128:Eye Diseases D006801:Humans D011446:Prospective Studies D012106:Research D011795:Surveys and Questionnaires
Sight loss Vision Priorities Partnership Research James Lind Alliance