I joined a facebook group my husband introduced me to and read of so many other people who have to deal with RP either themselves, their children, or their spouses. 이 희귀 질환이 의사가 생각하는 것보다 더 흔하다는 사실을 알게 된 것은 씁쓸한 일입니다. At least, I know Im not alone.