Formal home-based care, although preferred by many beneficiaries and family members remains under-developed, making informal care is often the only option for many families, putting a high financial burden on those affected.
Vaikka järjestetty kotihoito olisi monille edunsaajille ja perheenjäsenille mieluisin vaihtoehto, sen kehitysaste on niin heikko, että epävirallinen hoito on monille perheille usein ainoa mahdollisuus.