Development and pilot testing of a nurse-led posttreatment support package for bowel XXXX survivors.

@entity5 @entity1 @entity1741 @entity14
BACKGROUND: @entity14 ( @entity14 ) is the most common @entity5 affecting both @entity1 and @entity1 in Australia. The illness and related treatments can cause distressing adverse effects, impact on emotional and psychological well-being, and adversely affect social, occupational, and relationship functioning. Current models of follow-up fail to address the complex needs arising after treatment completion. Strategies to better prepare and support survivors are urgently required. OBJECTIVES: This study aimed to develop and pilot test an innovative supportive care program for @entity1 with potentially curative @entity14 . METHODS: The SurvivorCare intervention was developed by a multidisciplinary team using 3 key principles: (1) promote @entity1 involvement and engagement; (2) address the specific needs of individual @entity1 , and (3) use evidence-based strategies to promote well-being and reduce treatment sequelae. It also addressed 4 essential components of survivorship planning, defined by the US Institute of Medicine. Ten survivors completed questionnaires and satisfaction interviews before and after receiving the intervention. RESULTS: SurvivorCare comprises survivorship educational materials (booklet, @entity1741 , and question prompt list), a tailored survivorship care plan, a tailored nurse-led end-of-treatment consultation, and 3 follow-up telephone calls. Pilot data demonstrated that survivors considered the intervention appropriate, relevant, and useful. CONCLUSIONS: SurvivorCare is a well-received, comprehensive intervention that will now be evaluated in a randomized controlled trial aiming to reduce distress and unmet needs and improve quality of life in @entity14 survivors. IMPLICATIONS FOR PRACTICE: If SurvivorCare is shown to be effective, it will be possible to quickly and broadly disseminate this model of care.
