'The moment I leave my home - there will be massive challenges': experiences of living with a XXXX in Botswana.

@entity1566 @entity1 @entity130
BACKGROUND: When suffering a @entity1566 ( @entity1566 ), the @entity1 and family face numerous challenges regardless of socio-economic level. The stigmatisation of @entity1 with disabilities has been reported, however, reports from Southern Africa are largely lacking. PURPOSE: To explore the experiences of living with a traumatic @entity1566 in Botswana concerning perceived attitudes, obstacles and challenges. METHOD: A qualitative approach with semi-structured interviews was conducted. Thirteen community-dwelling @entity1 who have lived with an @entity1566 for at least two years participated. RESULTS: A theoretical model was formed that illustrate the associations between the core category, Self, and the categories Relationships and Society. The model illustrates that personal resources, including a strong identity and a positive attitude, are crucial to the experience of inclusion in the community. A supportive family, a source of income, and faith were strong facilitators, while inaccessibility and devaluing attitudes were barriers. Having a disability led to increased risk of poverty and social exclusion. CONCLUSION: This study emphasised the importance of personal resources, family support, and improved accessibility to facilitate inclusion in the society. Informants requested legislation to advocate for the rights of @entity1 with disabilities to be respected, with the aim of moving towards an equal accessible society. Implications for Rehabilitation Reclaiming or restructuring one's identity after a @entity1566 is crucial for the @entity1 's ability to move on and develop beneficial coping strategies. Support from family and friends, staff and peer support are crucial parts in that process. Spirituality, values, needs and coping strategies vary profoundly among @entity1 sustaining disabling @entity130 . In striving to optimise care, rehabilitation staff needs to be attentive to the personal resources and preferences to be able to individualise care, encounter, and facilitate transition back to the community. Family members play a crucial part in rehabilitation. It is essential for the @entity1 ' well-being and care that they get explicit descriptions of the @entity1 's abilities. Living in a well-adapted home will facilitate well-being, independence, and return to work. Rehabilitation staff needs to focus their efforts on making this successful prior to discharge from hospital.
