The EULAR Outcome Measures Library: development and an example from a systematic review for XXXX instruments.

@entity1 @entity1643 @entity239 @entity571 @entity170 @entity1252 @entity4932 @entity1691 @entity210 @entity85 @entity309
OBJECTIVES: @entity1 reported outcomes (PROs) are relevant in rheumatology. Variable accessibility and validity of commonly used PROs are obstacles to homogeneity in evidence synthesis. The objective of this project was to provide a comprehensive library of "validated PROs". METHODS: A launch meeting with rheumatologists, PROs methodological experts, and @entity1 , was held to define the library's aims and scope, and basic requirements. To feed the library we performed systematic reviews on selected diseases and domains. Relevant information on PROs was collected using standardised data collection forms based on the COSMIN checklist. RESULTS: The EULAR Outcomes Measures Library (OML), whose aims are to provide and to advise on PROs on a user-friendly manner albeit based on scientific grounds, has been launched and made accessible to all. PROs currently included cover any domain and, are generic or specifically target to the following diseases: @entity309 , @entity571 , @entity1691 , @entity1643 , @entity1252 , @entity210 , @entity170 , @entity4932 , and @entity239 . Up to 236 instruments (106 generic and 130 specific) have been identified, evaluated, and included. The systematic review for @entity1252 , which yielded 10 specific instruments, is presented here as an example. The OML website includes, for each PRO, information on the construct being measured and the extent of validation, recommendations for use, and available versions; it also contains a glossary on common validation terms. CONCLUSIONS: The OML is an in progress library led by rheumatologists, related professionals and @entity1 , that will help to better understand and apply @entity85 .
