Perceived quality of health care in XXXX : a survey of members of the @entity1020 Society.

@entity1 @entity1020 @entity308 @entity1833
AIM: To investigate the experiences of @entity1 with @entity1020 within the British healthcare system. METHOD: The @entity1020 Society Questionnaire, a self completion questionnaire designed to survey the experiences of @entity1 with @entity1020 , was sent to 2000 randomly selected members of the @entity1020 Society. The questionnaire incorporated items about @entity1 's experiences with health professionals and the information and support provided by them at the time of diagnosis and thereafter. RESULTS: Over 50% thought their consultant eye specialist was not interested in them as a @entity1 and 40% were dissatisfied with their diagnostic consultation. 185 @entity1 thought their general practitioner (GP) was well informed about @entity1020 but twice as many @entity1 thought their GP was not well informed. About an equal number of @entity1 thought their GP was supportive as those who thought their GP was not supportive. A total of 1247 @entity1 were told "nothing can be done to help with your @entity1020 ." A number of negative emotional reactions were experienced by those @entity1 as a result, with 61% of them reporting feeling anxious or @entity308 . Of 282 @entity1 experiencing @entity1833 after diagnosis with @entity1020 , only 20.9% were offered explanations for them. CONCLUSIONS: Many @entity1 with @entity1020 have unsatisfactory experiences of the healthcare system. Many of the reasons for dissatisfaction could be resolved by healthcare professionals if they were better informed about @entity1020 and had a better understanding of and empathy with @entity1 ' experiences.
