Critical Situations in @entity1 , Adolescents and Young Adults with XXXX within the Home Setting.

@entity5 @entity1 @entity3124 @entity159
UNASSIGNED: Background: Over the course of @entity5 towards the end-of-life, @entity1 may experience symptoms that lead to distressing @entity3124 ( @entity3124 ) for the @entity1 and caregivers. Methods: We analysed the records of 133 @entity1 cared for by our paediatric palliative care team (PPCT) from 01/98-12/09. A @entity3124 was defined as deterioration of a condition caused by a symptom, which was life-threatening or acutely scaring the @entity1 (pt) or caregivers. Results: The majority of pts who died sustained no @entity3124 . In 38 (28.6%) pts 45 @entity3124 occurred. These accumulated towards the end-of-life (62.2% within the last week). About two-thirds were anticipated. There was no clustering of @entity3124 during the night/weekend. Leading symptoms were neurological. In 4 @entity3124 a pre-hospital emergency physician was alerted. 5 pts were readmitted to hospital. Most @entity3124 (88.9%) could be controlled in the home setting. Discussion: Despite anticipation, a relevant number of pts developed @entity3124 , which needed either additional medical intervention or other support by the PPCT. Considering the distressing and suffering character of @entity159 and dyspnoea, it is important to thoroughly address these conditions in palliative care. Conclusion: Advanced planning, close contact, good communication, detailed parental information, and a 24-h on-call service can reduce @entity3124 in @entity1 with @entity5 . @entity3124 are mainly manageable within the home setting. Treatment of @entity3124 should focus on the @entity1 's symptoms and wishes, and the needs of the whole family.
