Mental health and exposure to XXXX distress among families of nursing home residents with advanced @entity303 .

@entity1 @entity308 @entity303 @entity4681 @entity158 @entity1224
CONTEXT: The effect of suffering among @entity1 with advanced @entity303 on their family members' mental health has not been investigated. OBJECTIVES: To describe family members' exposure to distressing symptoms among nursing home (NH) residents with advanced @entity303 and associations between such exposure and family members' mental health. METHODS: Data were obtained from an 18-month prospective cohort study of NH residents with advanced @entity303 and their family member health care proxies (HCPs). Exposure to resident symptoms and associated fear and helplessness was measured quarterly using the @entity4681 ( @entity4681 ) scale (range 0-120). HCP mental health was assessed quarterly using the Composite International Diagnostic Interview Short Form (CIDI-SF) ( @entity308 ), K6 (psychological distress, range 0-24), and SF-12(  ) mental health subscale. RESULTS: Seven hundred seventy-nine @entity4681 scale assessments were completed by 225 HCPs. The most frequent distressing symptoms were the following: feeling the resident had had enough (33.2%), @entity1224 (21.1%), and @entity158 (18.9%). The symptoms eliciting the greatest fear were thinking the resident was dead and seeing them choke. A sense of helplessness was highest when the resident was observed to be in @entity158 or @entity1224 . Family members with @entity4681 scores >0 were more likely to meet criteria for @entity308 on the CIDI-SF (adjusted odds ratio [AOR] 2.59, 95% confidence interval [CI] 1.14, 5.85), have a K6 score >0 (AOR 2.31, 95% CI 1.55, 3.43), and have lower SF-12 scores (adjusted parameter estimate -1.51, 95% CI -2.56, -0.47). CONCLUSION: Family member exposure to distressing symptoms experienced by their loved ones with advanced @entity303 is not uncommon and is associated with worse mental health.
