Exploring carer perceptions of training in out-of-hospital use of buccal @entity1363 for emergency management of XXXX (2008-2012).

@entity1 @entity410 @entity26 @entity1245 @entity302 @entity1363 @entity159
AIM: This study aims to explore carer perceptions of training in out-of-hospital use of buccal @entity1363 for emergency management of @entity410 . METHODS: A random sample of 100 families (from n = 198) who underwent training at the Sydney @entity1 's Hospitals Network, Randwick campus (2008-2012) were invited to participate in a telephone questionnaire. RESULTS: Sixty-three carers participated. Thirty-three @entity1 were female, median age at training was 4 years and @entity410 onset 2.75 years. @entity410 were generalised in 26 @entity1 and focal in 37. Common reasons for prescription included history of prolonged @entity410 (38%), recent diagnosis of @entity302 (33%) and overseas travel (11%). Ninety-eight per cent of carers reported that training instructions were clear, and 94% reported the risks of using @entity1245 were satisfactorily explained. Ninety per cent felt confident to administer the drug following training and 62% completed first aid training as recommended. Suggestions for improvement included follow-up/review and additional demonstration/practice. Twenty-one carers (33%) reported giving buccal @entity1363 a median five times, 67% reported it was effective in terminating the @entity410 and 71% called an ambulance as instructed. Problems reported in administration included excessive secretions and difficulties drawing up the solution. One @entity1 experienced breathing difficulties requiring @entity26 by the paramedics. Four @entity1 were admitted to @entity1 's intensive care unit with @entity159 requiring intubation. CONCLUSIONS: Training for out-of-hospital use of buccal @entity1363 was considered valuable by carers. Only a third of the sample subsequently used @entity1363 . Half of these carers reported problems in administration and one reported respiratory difficulty. These results highlight the importance of drug safety and efficacious training programmes.
