Prognosis of XXXX in childhood: a long-term follow-up study.

@entity1 @entity410 @entity548 @entity1269 @entity73 @entity302 @entity6447 @entity10492
Little is known about long-term physical sequelae, cognitive functioning, and quality of life of @entity1 who have had a @entity548 . Fifty-six @entity1 (29 females, 27 males) under 16 years of age at time of the @entity548 were studied. Mean age at time of @entity548 was 7.7 years (range 1 month to 15.9 years). The primary site and cause of the @entity548 at baseline were determined. Occurrences of death, re-bleedings, and @entity410 during follow-up were recorded. @entity1 who survived were invited for a follow-up examination including physical check-up, general screening of cognition, and an inventory of subjective health perception. Thirteen @entity1 died directly as a result of the @entity548 ; nine experienced a recurrent @entity548 , which was fatal in three; six @entity1 developed @entity302 . At follow-up 36 of 56 @entity1 were still alive. Mean follow-up time was 10.3 years (range 1.3 to 19.9 years) and mean age was 18.6 years (range 1.8 to 34.1 years). There was no @entity1 lost to follow-up. Five @entity1 declined to visit the hospital. In 15 out of 31 @entity1 who could be examined, no physical impairment was observed, 11 had a @entity1269 of varying severity, and three had symptoms of @entity6447 . One @entity1 had persisting @entity10492 and one persisting paraparesis. Signs of @entity73 were found in 15 @entity1 . Of the @entity1 who survive @entity548 , the physical and functional prognosis is relatively good, as almost all @entity1 were independent at follow-up. However, only a quarter of the surviving @entity1 had no physical or @entity73 after a mean follow-up period of 10 years. The majority had low self-esteem as well as emotional, behavioural, and health problems.
