The Swedish XXXX registry - clinical support tool and scientific resource.

@entity1 @entity15
UNASSIGNED: The Swedish @entity15 registry (SMSreg) is designed to assure quality health care for @entity1 with @entity15 ( @entity15 ). It has been active since 2001 and web-based since 2004. It runs on government funding only and is used in all Swedish neurology departments. The SMSreg currently includes data on 14,500 of Sweden's estimated 17,500 prevalent @entity1 with @entity15 . One important function of SMSreg, to which participation is voluntary, is to serve as a tool for decision support and to provide an easy overview of the @entity1 information needed at clinical visits. This is its core feature and explains why the majority of Swedish @entity15 specialists contribute data. Another success factor for SMSreg is that entered data can be readily accessed, either through a query function into Excel format or through a set of predesigned tables and diagrams in which parameters can be selected. Recent development includes a portal allowing @entity1 to view a summary of their registered data and to report a set of @entity1 -reported outcomes. SMSreg data have been used in close to 100 published scientific reports. Current projects include an incidence cohort (EIMS), post-marketing cohorts of @entity1 on novel disease-modifying drugs (IMSE), and a prevalence cohort (GEMS). As these studies combine physical sampling and questionnaire data with clinical documentation and possible linkage to other public registries, together they provide an excellent platform for integrated @entity15 research.
