The Outcomes of XXXX With Pediatric Acute Respiratory Distress Syndrome: Proceedings From the Pediatric @entity647 Consensus Conference.

@entity1 @entity649 @entity358 @entity647
OBJECTIVE: To provide additional details and evidence behind the recommendations for outcomes assessment of @entity1 with @entity649 from the Pediatric @entity647 Consensus Conference. DESIGN: Consensus conference of experts in pediatric @entity647 . METHODS: A panel of 27 experts met over the course of 2 years to develop a @entity649 and to make recommendations regarding treatment and research priorities. The outcomes subgroup comprised four experts. When published data were lacking, a modified Delphi approach emphasizing strong professional agreement was used. RESULTS: The Pediatric @entity647 Consensus Conference experts developed and voted on a total of 151 recommendations addressing the topics related to @entity649 , seven of which related to outcomes after @entity649 . All seven recommendations had strong agreement. @entity1 with @entity649 continue to have a high mortality, specifically, in relation to certain comorbidities and etiologies related to @entity649 . Comorbid conditions, such as an immunocompromised state, increase the risk of mortality even further. Likewise, certain etiologies, such as @entity358 , also place @entity1 at a higher risk of mortality. Significant long-term effects were reported in adult survivors of @entity649 : diminished lung function and exercise tolerance, reduced quality of life, and diminished neurocognitive function. Little knowledge of long-term outcomes exists in @entity1 who survive @entity649 . Characterization of the longer term consequences of @entity649 in @entity1 is vital to help identify opportunities for improved therapeutic and rehabilitative strategies that will lessen the long-term burden of @entity649 and improve the quality of life in @entity1 . CONCLUSIONS: The Consensus Conference developed pediatric-specific recommendations for @entity649 regarding outcome measures and future research priorities. These recommendations are intended to promote optimization and consistency of care for @entity1 with @entity649 and identify areas of uncertainty requiring further investigation.
