Parents' experiences of having a baby with XXXX .

@entity1 @entity4998
UNASSIGNED: Health professionals must be aware of the impact on parents of the birth of @entity1 with @entity4998 . This study aimed to analyze the experiences and perceptions of such parents. Parents of 30 @entity1 who were evaluated in a reference center for @entity4998 ( @entity4998 ) were interviewed. The questionnaire covered the prenatal period, the moment they were told about the disorder, initial management by health professionals, and problems they experienced. Only two cases were detected during pregnancy. The news was usually given to the mother alone by pediatricians. Most parents kept it secret and avoided exposing the baby to the prejudice of others. Parents of @entity1 who were referred without sex assignment usually held a personal belief of their @entity1 's sex. Previous assignment was based on clinical examination and/or karyotype. Spreading knowledge about @entity4998 could increase awareness of this issue, thus reducing parents' shock and societal stigma. Training of neonatal care teams is required to avoid assignment before evaluation.
