Young Adult XXXX Survivors' Experience with @entity5 Treatment and Follow-Up Care and Perceptions of Barriers to Engaging in Recommended Care.

@entity5 @entity1 @entity148
UNASSIGNED: We examined correlates of low engagement in the healthcare system, experiences with survivorship care, barriers to follow-up care, and potential resources for promoting follow-up care among young adult survivors of childhood @entity5 . We conducted a mixed-method study involving surveys of 106 survivors of childhood @entity5 aged 18-34 recruited from a university-affiliated @entity1 's hospital and an NCI-designated @entity5 center in the Southeastern USA. Phone-based semistructured interviews were then conducted in a subset of 26. Assessments included health factors, psychosocial factors, healthcare system interaction, and interest in resources to promote engagement in healthcare. Survey @entity1 were on average 22.14   (SD   =   3.16) years old, 50.0  % female, and 77.4  % White. Overall, 46.0  % had attended survivorship clinic, 47.2  % reported receiving a treatment summary, 68.9  % had a primary care provider, and 17.0  % reported no interaction with healthcare in the past 2  years. Correlates of less than annual healthcare provider visits included being older (p   =   0.003), being male (p   <   0.001), lack of insurance (p   =   0.002), and having had chemotherapy (p   =   0.05). @entity1 reported varied experiences in terms of how health and treatment information was presented, from none or too little to overwhelming or @entity148 -provoking amounts. Barriers to engaging in survivorship care included no/limited insurance, time, or transportation; major life changes; @entity148 ; and difficulty transitioning from pediatrics to adult care. @entity1 highlighted the need for educational and psychosocial resources, particularly technology-based resources. Multilevel interventions are needed to increase engagement in survivorship care among young adult @entity5 survivors. Technology-based resources addressing social support and mental well-being are intervention possibilities.
