Assessment of knowledge in adolescents with XXXX using a novel transition tool.

@entity1 @entity30 @entity29
BACKGROUND: In the transition from pediatric to adult care, @entity1 are expected to increase their level of self-care. Knowledge of disease characteristics, medications, and resources is crucial. This study evaluated the knowledge of adolescents with @entity29 ( @entity29 ) and their parents in four major domains: disease characteristics, treatments, medical history, and health services resources. METHODS: @entity1 age 14-18 years and their parents completed MyHealth Passport for @entity29 as a cross-sectional assessment of knowledge. Responses were evaluated for accuracy using medical records. The proportion of correct responses between @entity1 /parents were compared. RESULTS: In all, 78 @entity1 (age 16.2    1.2 years, @entity29 duration 3.6    2.5 years), and 64 parents participated. @entity1 and parents were equally likely to answer questions correctly regarding disease characteristics and treatment, but not health services resources. Most @entity1 accurately identified @entity29 classification and listed medications. Neither @entity1 nor parents accurately identified disease location or previous investigation results. Parents more likely correctly named insurance provider (odds ratio [OR] 6.33, 95% confidence intervals [CI] 2.68-15.0), and pharmacy location (OR 18.5, 95% CI 4.6-76.8). Multivariate regression revealed that @entity1 with @entity29 type unclassified were more likely to be aware of their diagnostic classification (OR 17.2, 95% CI 2.81-105.4 compared with @entity30 @entity1 ). Older @entity1 were less likely to recall if they had a small bowel x-ray (OR 0.59, 95% CI 0.35-0.996). CONCLUSIONS: Future educational interventions should target areas of weakness in adolescent knowledge, particularly health services resources. The MyHealth Passport for @entity29 (available freely online) could educate and instill independence in the transitioning adolescent.
