Identifying psychological distress at key stages of the XXXX illness trajectory: a systematic review of validated self-report measures.

@entity5 @entity1 @entity308 @entity146
CONTEXT: To enable study of @entity5 journey, we need to be able to select and map validated measures through the @entity5 trajectory. OBJECTIVES: To examine the performance of self-report measures for identifying clinically significant levels of @entity5 @entity1 trajectory. METHODS: Electronic searches of Medline, PsychInfo, CINAHL, EmBase, The Cochrane Library, AMED, BNI, ASSIA, and Web of Science were undertaken. Only studies of self-report measures that used validated diagnostic tools for @entity146 diagnosis as the criterion measure were included. We then further limited our focus to those papers that specified a trajectory stage. RESULTS: Forty-eight different self-report measures were reported in the 85 papers identified. The @entity308 ( @entity308 ) was the most frequently reported measure (23 times). Several other measures were reported between two and four times, but most (37) measures were reported only once. Twenty-two of the 85 included papers reported measure performance by trajectory stage. Best performing measures based on validation data available could be identified for each trajectory stage: for pretreatment, the @entity308 for identifying @entity308 ; during treatment, the @entity308 and Mental Health Inventory-5 (MHI-5) together for identifying clinically significant distress; post-treatment, the @entity308 for identifying @entity308 ; and at recurrence and during the palliative phase, the Brief Edinburgh @entity308 Scale (BEDS) for identifying @entity308 . CONCLUSION: No single measure had evidence to support use throughout the illness trajectory in a longitudinal study, but the @entity308 , in combination with the MHI-5, was supported during the @entity5 treatment phase, and BEDS in the palliative care phase.
