Diffuse pontine XXXX in Jordan and impact of up-front prognosis disclosure with parents and families.

@entity1 @entity11 @entity5
For @entity1 with diffuse pontine @entity11 , our institution offers local radiotherapy and supportive care only. The prognosis and do-not-resuscitate orders are discussed upfront with @entity1 ' parents. To investigate the effectiveness of this policy, we retrospectively reviewed records of @entity1 with diffuse pontine @entity11 treated at the institution over a 49-month period. This study included 19 @entity1 (16 @entity1 and 3 @entity1 ). The median age at diagnosis was 7 years. One @entity1 remained alive at the end of the study, 2 were lost to follow-up, and 16 were confirmed dead. The median survival was 8.2 months. Do-not-resuscitate discussion was documented for 14 @entity1 and successfully initiated for 11. None of those confirmed dead had been offered life support. Contrary to the common belief, our study showed that do not resuscitate should be addressed in Muslim @entity1 with high-risk @entity5 . We also found that diffuse pontine @entity11 warrants further study in developing countries.
