XXXX : what happens in adulthood?

@entity1 @entity322 @entity458 @entity2463
OBJECTIVE: To comprehensively evaluate the outcomes in adults who were born with @entity2463 ( @entity2463 ), to assess the relationships between the major types of ARM and outcomes, and to examine the relationships between bowel and urinary function and sexual well-being, as advances in surgical treatment for @entity2463 have led to more @entity1 surviving into adult life, and adult data on urinary and bowel function are scant, with even less known about the effect of diagnosis and treatment on @entity458 . @entity1 AND METHODS: In all, 74 adult @entity1 with a diagnosis of ARM confirmed by review of paediatric medical records completed a series of validated questionnaires on urinary and bowel function, body esteem, sexual well being, fertility and overall quality of life. RESULTS: There were high levels of urinary and bowel @entity322 for both @entity1 and @entity1 . A high ARM was associated with a greater degree of @entity322 . Both @entity1 and @entity1 scored more poorly than controls on the body esteem, sexual well-being and quality-of-life assessments. Urinary and bowel @entity322 was associated with poorer sexual well-being. CONCLUSIONS: Bowel and urinary outcomes in adults appear to be worse than suggested in paediatric reports, with high levels of both urinary and fecal @entity322 . Poorer outcomes appeared to affect sexual well-being adversely. To date, attention to issues during transition from childhood to adulthood, particularly concerns about sexual function and well-being, has been conspicuous by its absence. @entity1 -focused multidisciplinary care during this transition must address these issues, which are central to an acceptable quality of life.
