If You Did Not Document It, It Did Not Happen: Rates of Documentation of Discussion of Infertility Risk in Adolescent and Young Adult Oncology XXXX ' Medical Records.

@entity1 @entity249 @entity0 @entity706 @entity242 @entity5 @entity1778
PURPOSE: The adolescent and young adult (AYA) population is underserved because of unique late-effect issues, particularly future fertility. This study sought to establish rates of documentation of discussion of risk of @entity249 , fertility preservation (FP) options, and referrals to fertility specialists in AYA @entity1 ' medical records at four @entity5 centers. METHODS: All centers reviewed randomized records within the top four AYA disease sites (breast, @entity1778 / @entity706 , @entity242 , and testicular). Eligible records included those of @entity1 : diagnosed in 2011, with no prior receipt of gonadotoxic therapy; age 18 to 45 years; with no multiple primary @entity5 ; and for whom record was not second opinion. Quality Oncology Practice Initiative methods were used to evaluate documentation of discussion of risk of @entity249 , discussion of FP options, and referral to a fertility specialist. RESULTS: Of 231 records, 26% documented @entity249 risk discussion, 24% documented FP option discussion, and 13% documented referral to a fertility specialist. Records were less likely to contain evidence of @entity249 risk and FP option discussions for female @entity1 (P = .030 and .004, respectively) and those with @entity0 (P = .021 and < .001, respectively). Records for Hispanic/Latino @entity1 were less likely to contain evidence of @entity249 risk discussion (P = .037). Records were less likely to document @entity249 risk discussion, FP option discussion, and fertility specialist referral for @entity1 age >=  40 years (P < .001, < .001, and .002, respectively) and those who already had @entity1 (all P < .001). CONCLUSION: The overall rate of documentation of discussion of FP is low, and results show disparities among specific groups. Although greater numbers of discussions may be occurring, there is a need to create interventions to improve documentation.
