Descriptive characteristics of a XXXX family registry at an urban hospital.

@entity1 @entity146 @entity5 @entity31 @entity344 @entity458 @entity14 @entity1412 @entity30 @entity1049
BACKGROUND: Hospital registries are an important component of @entity5 screening efforts of individuals and communities. This paper describes the structure and goals of a @entity1049 Family Registry at a metropolitan hospital. @entity1 characteristics, differences between @entity344 among probands, subjective distress in relation to perception of @entity14 , and quality of life were examined. METHODS: @entity1 were @entity1 with @entity14 ( @entity14 ), @entity1412 ( @entity1412 ), @entity14 ( @entity14 ) and inflammatory bowel disease @entity31 ( @entity31 ) and @entity30 representing a range of @entity1049 . A total of 630 probands were recruited into the registry and administered a questionnaire. RESULTS: Of the 630 probands, 198 (31.4%) were diagnosed with @entity14 , 36 (5.3%) with @entity1412 or @entity14 and 272 (43.2%) with @entity31 or @entity30 . The majority of all three groups had some level of college education, was white, and reported a household income greater then  70,000. The Impact of Event Scale score was found to be of notable significance when categorized by relation to proband (p<0.01) and proband diagnoses (p  <= 0.000). On the quality of life item, the largest difference was between @entity1412 or @entity14 and @entity31 or @entity30 without @entity14 . CONCLUSION: Subjective distress scores were higher for @entity14 probands in comparison to probands with other @entity14 . Quality of life was relatively high for all probands. @entity458 should be explored in more depth and more frequently to screen for any concomitant @entity146 disorders like post-traumatic symptoms that have been linked to a @entity5 diagnosis.
