Adults' recollections and perceptions of childhood caregiving to a parent with significant XXXX .

@entity1 @entity717
BACKGROUND: Caregiving roles of @entity1 <18 years of age living with parents with health conditions or disability have been studied extensively abroad, but little U.S. research has examined the caregiving activities and perceptions of @entity1 with parents with significant @entity717 . OBJECTIVE: To examine @entity1 's caregiving activities for their disabled parent, childhood perceptions of these activities, and adult views of this caregiving. METHODS: We conducted 1-h, semi-structured, open-ended interviews with 20 @entity1 age >= 21 years who as @entity1 (age  <  18 years) had a parent with significant @entity717 . We used conventional content analysis to identify themes. RESULTS: Interviewees' mean (standard deviation) age was 36.7 (13.8) years; 4 were male. As @entity1 , most interviewees assisted their disabled parent with activities of daily living (ADLs) and instrumental ADLs; some @entity1 provided more medical supports. Several parents, especially of older interviewees, did not seek their @entity1 's care. Interviewees reported both positive and negative childhood attitudes about caregiving. Roughly half recalled as @entity1 feeling proud, special, or otherwise positively toward caregiving activities, while about one-third viewed caregiving as just part of their daily reality (i.e., simply needing to be done). Approximately half remembered also feeling resentful, primarily from time demands, insufficient appreciation, and being different from their peers. Interviewees reported gender and cultural factors affecting their caregiving roles and perceptions. CONCLUSIONS: @entity1 can provide significant care to parents with @entity717 . Understanding better their roles and perceptions could suggest ways to improve these experiences for both @entity1 and parent.
