[The mental stress of the accompaniment in XXXX ].

@entity1 @entity146 @entity458 @entity158 @entity195
INTRODUCTION: @entity195 affects @entity1 in time and space and all dimensions of emotional, cognitive and social life. It is, in return, an unprecedented threat for the family, a disaster for each member of the family. Because of the love story, because of the suffering, the disease remains the relationship between @entity1 and caregiver. We try to approach their suffering according to the carer's reports. Our research, conducted with support from France Alzheimer, aims to understand the nuances of the experience of becoming the accompanying @entity1 , drawing on some key moments of this accompaniment. METHODOLOGY: It is through an exploratory research that we met eight caregivers of @entity1 with @entity195 . Among them, seven were the spouses (four of seven @entity1 are @entity1 ), and one was the daughter of a @entity1 . In a clinical psychological environment, we asked each caregiver the same question: "How would you talk about living or having lived @entity195 ?" Our response will only aim to support words of the @entity1 whenever necessary, but will also propose in difficult and particularly challenging moments, the possibility of sharing to enable the @entity1 to verbalize their emotions. RESULTS: The meeting with some caregivers evidenced the preservation of a particular relationship with the @entity1 , relationship within which the caregiver perceives in return the unspeakable weight of a disease, which works silently. @entity195 induces @entity458 and requires great investment by caregivers, which is grafted on an earlier relationship. We should not consider the modifications in a linear relationship @entity1 -caregiver but in a circular relationship, which complicates the relation of the couple and makes it indecisive. The violence of the confrontation with this disease results from multiple factors: social representations, impact of the diagnosis, evolution of the disease, affectivity and permanent interactions, in spite of the non verbal communication of the @entity1 , which associates a love story, behaviour disorders and the impact on the social circle. The family's responses are for example denial, overprotection, mothering and @entity146 in caregiving in order to maintain the relationship. Becoming a caregiver is difficult because of the limit between professional and caregiver. Accompaniment is not a simple role of watching and caring. Because of the love, because of the strength of the communication which continues even in the absence of words, the investment remains massive and @entity195 opens a distance where the relationship, if it is perturbed, is none the less reactivated, and makes the accompaniment possible, however @entity158 it may be.
