[Principles of multidisciplinary management of XXXX ].

@entity1 @entity1555 @entity204
UNASSIGNED: Given the gradual progression observed in @entity1555 , organization of care in multidisciplinary consultations is essential for optimal management of the different aspects of the disease. Drawing up a care plan is always preceded by a specific consultation for the announcement of the diagnosis with both the parents and the @entity1 . Explaining to the @entity1 the origin of his problems with simple words, telling him that why he experienced a particular symptom has been understood, is a fundamental step. The @entity1 needs to receive the information at different times of the disease following the rhythms of the disease stages, with an appropriate lead time. With the progress achieved in managing this disease, more than 90% of these @entity1 now live into adulthood. The switch from pediatric consultations to adult consultations, marking the transition from childhood management at adulthood, is a major challenge in the organization of care. Although today @entity204 occurs most often in adulthood, some @entity1 die in childhood. For the majority of teams who care for @entity1 , whatever the initial pathology may be, the notion of care continuity and accompaniment from the announcement of the disease to the terminal phase is essential. Increasing numbers of therapeutic trials have been developed over the past few years aiming to investigate @entity1 with @entity1555 . However, they must not neglect the overall management of these @entity1 and provide the best accompaniment possible.
