Parents' experiences of a Family Support Program when a parent has incurable XXXX .

@entity1 @entity204 @entity221 @entity5
AIMS AND OBJECTIVES: The Family Support Program was created to support @entity1 and parenting when one of the parents has incurable @entity5 . We chose a family-based approach to support parent's coping and to help families pull together, identify strengths in the family and learn how to seek help. BACKGROUND: @entity5 is usually a new experience for young families. In most cases, parents do not have the necessary knowledge about their @entity1 's need for information and support about their parent's serious illness and @entity204 . DESIGN: A qualitative evaluation study based on data collected through in-depth interviews focusing on parent's experiences with the Family Support Program. METHODS: @entity1 were @entity1 with incurable @entity5 and their partners and ex-partners with @entity1 aged between 5-18 years. Thirteen parents were in-depth interviewed. RESULTS: Parents described how the Family Support Program helped them gain greater insight into their @entity1 's thoughts and reactions and into how the situation affected their daily living. Parents reported that conflicts were reduced, they could talk more openly about the situation in the family and that they were shown how to support their @entity1 's coping. CONCLUSION: The Family Support Program met the parents in the study's needs for more information and support about how to cope with their @entity1 during the @entity1 's @entity221 . RELEVANCE TO CLINICAL PRACTICE: The Family Support Program is described in detail in a manual that makes it easy for other health workers to use the same programme. The Family Support program was in use in outpatient clinics, oncology wards and palliative care units and was provided both from nurses and social workers trained in @entity5 care. Parent's in the study would like the Family Support Program to be available to all @entity1 who receive the poor prognosis that their @entity5 cannot be cured.
