'I was shocked': A Malaysian lecturer's Tuberculosis (TB) experience
It all started last September (2023) with a nightly low-grade fever that would come and go.

For two months, senior lecturer Dr Mohd Usman Mohd Junaidi tolerated the “warm” feeling,

Even though he didn’t exercise much, the 36-year-old non-smoker considered himself relatively healthy and assumed the fever was caused by work-related stress as he had recently been given administrative responsibilities at his workplace.

Unsure why he was feeling sluggish, he tested for Covid-19 numerous times, but the results were always negative.

He shares: “A month into the fever, I started to have a dry cough at night and could not sleep.

“Two weeks later, I was coughing up phlegm, and eventually, it was phlegm plus blood.

“I went to the general practitioner (GP) and was given antibiotics because he said my throat was inflamed.

“The medicines didn’t work and he prescribed a stronger antibiotic.”

Still, Dr Mohd Usman didn’t get better, and on his next visit to the GP, the doctor noticed that his lymph nodes had become swollen.

He had also lost eight kilogrammes despite eating normally.

The GP then ordered a blood test, which revealed there was a bacterial infection.

Dr Mohd Usman was advised to consult an ear, nose and throat (ENT) specialist, which he promptly did.

The specialist conducted a series of tests, took his phlegm specimen and sent it to the lab to be analysed.

The diagnosis: tuberculosis (TB) of the lung.

“I was shocked,” admits Dr Mohd Usman.

He has no idea where, when or how he picked up this infectious disease.

He says: “Perhaps it was from a colleague who had TB sometime back, but I never talked or mingled with him.

“Or it could have been from my brother, who was diagnosed with TB in 2022, although I only visited him a few times, with a mask on.

“I really don’t know, but thankfully, I was detected early.”

Dr Mohd Usman was referred to the Directly Observed Therapy, Short-course (DOTS) clinic at Universiti Malaya Medical Centre (UMMC), Kuala Lumpur, to commence treatment immediately.

At this clinic, patients make daily visits to take their medicines from a trained healthcare worker, who provides the prescribed TB drugs and watches the patient swallow every dose.

This is to ensure that the patient is not only taking the drugs (especially vital in combating drug-resistant TB), but also that they are taking them in the right combinations for the correct duration of time.

When the healthcare worker is confident treatment can be adhered to at home, they will appoint a family member to keep tabs on the patient.

Dr Mohd Usman spending time reading with his three kids, whom he missed terribly during his isolation period.

Upward trend

TB is caused by the bacteria Mycobacterium tuberculosis, which spreads through the air.

The bacteria most often settle in the lungs and grow.

From there, they can move through the blood to other parts of the body, such as the kidneys, spine and brain.

TB in the lungs or throat can be infectious, while TB in other parts of the body is usually not infectious.

When people with lung TB cough, sneeze or spit, they propel the bacteria into the air.

If another person inhales even a few of these germs, he can become infected.

However, not everyone becomes sick as the majority of people are able to fight the bacteria and stop them from growing, although they may still be present in the body.

This is known as a latent TB infection, i.e. the bacteria remain dormant and cannot spread to others.

But in people who have a weak immune system, such as smokers or those with HIV (human immunodeficiency virus), diabetes or malnutrition, the bacteria become active, multiply and cause disease.

In many countries, including Malaysia, TB disease is back on the rise.

According to the Health Ministry, Malaysia recorded 26,781 TB cases last year (2023) – a 5.47% increase from the 25,391 cases reported in 2022.

When someone develops TB disease, the symptoms may be mild for many months.

This can lead to delays in seeking care and results in transmission of the bacteria to others.

TB symptoms include:

A cough that lasts three weeks or longer

Pain in the chest

Coughing up blood or sputum

Weakness or fatigue

Weight loss

Loss of appetite

Chills

Fever

Night sweats.

Once Dr Mohd Usman discovered he had TB, he quickly isolated himself in a room as he was told he would be contagious for up to three weeks into his course of treatment.

He also sent his wife and three kids for TB screening.

All tested negative, much to his relief.

The World Health Organization (WHO) estimates that people with TB disease can infect up to 10-15 other people through close contact over the course of a year.

Without proper treatment, up to two-thirds of people with TB disease will die.

The vast majority of TB cases can be cured when medicines are provided and taken properly.

Treatment usually involves taking a course of four antimicrobial drugs for six to nine months.

If patients stop taking antibiotics before completing the course or skip a dose, the bacteria may become resistant to the antibiotics.

This is potentially serious because TB then becomes difficult to treat and will require a longer course of treatment with different, and possibly more toxic, therapies.

Although previously not much of an exerciser, Dr Mohd Usman tries to do more physical activity these days to stay healthy. Here he is playing with his son.

Road to recovery

In Dr Mohd Usman’s case, he had to take five tablets (a combination of four drugs) at the same time daily for the first two months.

“How many tablets you take is dependent on your body weight.

“At the beginning, my wife would monitor that I was taking the medications as directed, as I cannot skip or miss a dose, or I’d have to start all over again.

“I was on medical leave for six weeks and didn’t see a difference in my condition until the second month when my cough got a bit better.”

Now that he has gotten into a routine, he diligently takes his medicines in the morning – without his wife’s supervision – as he’s determined to recover.

He recollects: “When I was in isolation, it was a very lonely period as I couldn’t hug my kids or be with them.

“We had to tell them I had an infectious disease and to stay away if they didn’t want to be infected.

“When I was out of isolation, I still wore a mask and would sanitise all the places I had been to in the house.

“I started questioning many things in my mind.

“Maybe my disease was more serious than I thought or maybe I wasn’t handling stress well.

“I had to motivate myself to get better and that meant taking the medications as prescribed.

“Now I’m still taking five tablets daily, but each tablet has a combination of two drugs.”

These days, Dr Mohd Usman spends more time with his young children, eats healthier (and on time), and has started jogging to keep fit and strengthen his immune system.

“My CT [computed tomography] scan last month showed my lungs were better, and just before Hari Raya Puasa (Apr 10, 2024), I’ll do some tests to see if I need to extend my treatment beyond six months.

“My cough is gone and my weight is back to 80kg,” he says.

The anxiety of contracting TB still plays in his mind and whenever someone coughs, Dr Mohd Usman is the first to run away!

“I’m not out of the woods yet, and yes, I’m scared it could be a TB cough – I don’t want to go through this journey again.”
Wellness,Tuberculosis,DOTS,antibiotics,antimicrobial resistance,AMR,infectious diseases
This infectious disease is not only still around in Malaysia, but also affecting more people.